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Factors determining access to surgery for children with congenital cardiac disease in Guatemala, Central America

Published online by Cambridge University Press:  14 July 2006

Rachel H. Kowalsky
Affiliation:
Morgan Stanley Children's Hospital of New York Presbyterian, New York, United States of America
Jane W. Newburger
Affiliation:
Department of Cardiology at Children's Hospital Boston and Department of Pediatrics at Harvard Medical School, Boston, Massachusetts, United States of America
William M. Rand
Affiliation:
Tufts University School of Medicine, Boston, Massachusetts, United States of America
Aldo R. Castañeda
Affiliation:
Dirección de Pediatría, La Unidad de Cirugía Cardiovascular de Guatemala, Ciudad de Guatemala, Guatemala Centroamerica

Abstract

Background: Surgical intervention for children with congenital cardiac disease in the developing world often occurs late. Our objective was to identify factors that placed Guatemalan children at risk for delayed care. Methods: We investigated the medical and socioeconomic background of 178 children under the age of 18 years who received their first corrective surgery for congenital cardiac disease at the Unidad de Cirugía Cardiovascular de Guatemala in 2002. A retrospective review of medical records was performed. Each case was stratified into one of three surgical classes based upon customary practice in the United States of America. The outcome we measured was age at surgery, adjusting for the surgical class. Logistic regression was performed and odds ratios calculated. Results: In univariate analyses, patients presented later for surgery if they were from rural areas (p equals 0.001), did not have social security membership (p equals 0.004), or paid any amount towards the cost of their surgery (p less than 0.001). Age at surgery was also positively correlated with the distance of the home of the patient from the surgical centre (p equals 0.002). For the subset of patients who applied for financial assistance, we found that children presented later for surgery if they required institutional support (p equals 0.001), or came from households of larger size (p less than 0.001). Conclusions: Guatemalan children with congenital cardiac disease may be at risk for delayed surgical care if they come from rural areas, areas distant from the surgical centre, or from families without membership of social security.

Type
Original Article
Copyright
© 2006 Cambridge University Press

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References

Chang RR, Chen AY, Klitzner TS. Factors associated with age at operation for children with congenital heart disease. Pediatrics 2000; 105: 10731081.Google Scholar
Tapia J, Zilleruelo R, Jaeger H. Mortalidad por cardiopatías en menores de un año. Chile, 1988. Orientaciónes y desafíos para la década del noventa. Revista Chilena de Pediatría 1991; 62: 190197.Google Scholar
Cerponi P, Robillard PY, Hulsey TC, Sibille G, Nguyen J. Congenital heart disease diagnosed in Guadeloupe. Bulletin of the Pan-American Health Organization 1993; 27: 151153.Google Scholar
Hung LC, Mohan AJ, Soo TL, Ng HP. Pattern of congenital heart disease and access to tertiary cardiac care in Malaysia. Med J Malaysia 2000; 55: 424432.Google Scholar
Perlstein MA, Goldberg SJ, Meaney FJ, Davis MF, Kluger CZ. Factors influencing age at referral of children with congenital heart disease. Arch Pediatr Adolesc Med 1997; 151: 892897.Google Scholar
United Nations Development Programme (UNDP). Guatemala: La fuerza incluyente del desarrollo humano. Informe de Desarrollo Humano 2000. (Guatemala: The inclusive force of human development. Human Development Report 2000) Guatemala City: UNDP, 2000.
Central Intelligence Agency (2005). The world factbook, Guatemala. http://www.cia.gov/cia/publications/factbook/print/gt.html (30 Aug, 2005).
Central Intelligence Agency (2005). The world factbook, United States. http://www.cia.gov/cia/publications/factbook/print/us.html (30 Aug, 2005).
Casanova AR, Selman-Houssein SE, García Morejón C, et al. Un nuevo enfoque de tratamiento integral del niño con cardiopatĩa en Cuba. Bol Oficina Sanit Panam 1994; 117: 275276.Google Scholar
Fixler DE, Pastor P, Sigman E, Eifler CW. Ethnicity and status: impact on the diagnosis of congenital heart disease. J Am Coll Cardiol 1993; 21: 17221726.Google Scholar